Guest Blogger

Statement by Friends & Family of Rodger McFarlane on his Death

Filed By Guest Blogger | May 18, 2009 4:00 PM | comments

Filed in: Living
Tags: community organizing, Gill Foundation, HIV/AIDS, obituary, Rodger McFarlane, suicide

Editors' Note: The following statement was released by Bruce Brothers, Patricia Evert, Tim Gill, Howard Grossman, M.D., Patrick Guerriero, Larry Kramer, Ilana Lobet, Caz Matthews, John McFarlane, Lulu McFarlane Crawford, Brad Miskell, Dean Prina, M.D., Susan Richardson, Tim Sweeney, Ted Trimpa, Urvashi Vaid, and Tom Viola on the death of Rodger McFarlane. McFarlane was an early AIDS activist and former head of the Gill Foundation.

RodgerMcFarlane.jpgIt is with deep sadness that we announce the death of our friend, colleague, and hero, Rodger McFarlane. A pioneer and legend in the lesbian, gay, bisexual and transgender (LGBT) civil rights and HIV/AIDS movements, Rodger took his own life in Truth or Consequences, New Mexico last Friday. In a letter found with his remains, Rodger explained that he was unwilling to allow compounding heart and back problems to become even worse and result in total debilitation. We know that Rodger was in a great deal of pain. Already disabled in his own mind, he could no longer work out or do all the outdoor activities he so loved. He was also now faced with the realization that he could literally not travel, making employment increasingly difficult. As his friends and family, we thought it was important that we communicate to the world that it has lost an amazingly wonderful individual who contributed so mightily to our humanity.

Rodger approached every aspect of his life with boundless passion and vigor. While many people go their entire lives wanting to be good at just one thing, Rodger excelled at virtually everything he did. Brilliant activist and strategist, decorated veteran, accomplished athlete, best-selling author, and humanitarian are just a few of the accolades that could be used to describe our friend. To know Rodger was to love an irreverent, wise-cracking Southerner who hardly completed a sentence that didn't include some kind of four-letter expletive. He fought the right fight every day, was intolerant of silence, and organized whole communities of people to advocate for justice. These were traits that endeared him to us and are traits that make his legacy incredibly rich and powerful.

The power of Rodger's many personal and professional accomplishments cannot be denied. He was on the forefront of responding to the AIDS epidemic that ravaged our country - and specifically the gay community - in the 1980's. Before HIV even had a name, in 1981, Rodger set up the very first hotline anywhere; he just set it up on his own phone. That was the Rodger we knew. A born strategist and leader, Rodger took three organizations in their infancy and grew each into a powerhouse in its own way, empowered to tackle this national tragedy.

One of the original volunteers and the first paid executive director of Gay Men's Health Crisis, the nation's first and largest provider of AIDS client services and public education programs, Rodger increased the organization's fundraising from a few thousand dollars to the $25 million agency it is today. Until his death, he was the president emeritus of Bailey House, the nation's first and largest provider of supportive housing for homeless people with HIV.

From 1989 to 1994, he was executive director of Broadway Cares/Equity Fights AIDS (BC/EFA), merging two small industry-based fundraising groups into one of America's most successful and influential AIDS fundraising and grant-making organizations. During his tenure at BC/EFA, annual revenue increased from less than $1 million to more than $5 million, while also leveraging an additional $40 million annually through strategic alliances with other funders and corporate partnerships. Rodger was also a founding member of ACT UP - NY, the now legendary protest group responsible for sweeping changes to public policy as well as drug treatment and delivery processes.

Most recently, Rodger served as the executive director of the Gill Foundation, one of the nation's largest funders of programs advocating for LGBT equality. He transformed the Foundation by sharpening its strategic purpose. He focused its philanthropy in the states, aligned its investment with political imperatives and forged relationships with straight allies that helped to further both the LGBT movement as well as the greater progressive movement. Rodger was instrumental in the creation of the Gill Foundation's sister organization, Gill Action. The brilliance of Rodger's vision is being seen today as important protections for LGBT people become a reality in more and more states.

No one will ever doubt that our friend Rodger lived a rich and complete life. A proud U.S. Navy veteran, Rodger was a licensed nuclear engineer who conducted strategic missions in the North Atlantic and far Arctic regions aboard a fast attack submarine. A gifted athlete, he was a veteran of seven over-ice expeditions to the North Pole. He also competed internationally for many years as an elite tri-athlete, and in 1998 and 2002, competed in the Eco-Challenges in Morocco and Fiji, where he captained an all-gay female-majority team.

In spite of the fact that Rodger never completed college, he was an accomplished and best-selling author and the producer of works for the stage. Rodger was the co-author of several books, including The Complete Bedside Companion: No Nonsense Advice on Caring for the Seriously Ill (Simon & Schuster, 1998), and most recently, Larry Kramer's The Tragedy of Today's Gays (Penguin, 2005). In 1993, he co-produced the Pulitzer Prize-nominated production of Larry Kramer's The Destiny of Me, the sequel to The Normal Heart.

Rodger had a reputation as a hard-ass. That reputation didn't do him justice. Many of us will remember Rodger as a caregiver, a man who nursed countless friends and family members battling cancer and AIDS. He was the most compassionate and giving of friends, especially to those in physical or emotional distress.

His many achievements were recognized throughout his life. Most recently, he had received the Patient Advocacy Award from the American Psychiatric Association. Other honors included the New York City Distinguished Service Award, the Presidential Voluntary Action Award, the Eleanor Roosevelt Award, and the Emery Award from the Hetrick Martin Institute, as well as Tony and Drama Desk honors.

How do you sum up someone's life in just a few words? It's impossible and you can't. To commemorate Rodger's life, his friends will organize celebrations of his, the details of which are still in the planning stages. If Rodger was anything, he was a character through and through; there are, quite literally, thousands of "Rodger stories." That's part of what made him such a special person. During our celebrations, we'll share some of these stories and reflect on the many legacies left by our friend for life, Rodger McFarlane.

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Cathy Renna Cathy Renna | May 18, 2009 5:11 PM

On behalf of Leah and I, we sent this out earlier today.

Rodger McFarlane was a pioneer in the gay, lesbian, bisexual and transgender community whose activism both saved lives and helped make all of ours lives better. When we founded Renna Communications, Rodger was supportive and generous, and he provided us with the kind of inimitable inspiration and
advice only he could give. He was no doubt the community spokesperson mostly likely to be "bleeped," but his voice is one that leaves a tremendous legacy to respect and cherish. Our hearts and thoughts go out to Rodger's friends and family. Rest in peace, Rodger, you leave the world a better place.

Rick Elliott | May 19, 2009 2:58 AM

I watched my wife suffer excruciating pain, a below knee amputation, dialysis, and many other symptoms of diabetes. Once her skin hurt so bad she couldn't even wear a soft cotton flannel nightgown. We had two animals who died of diabetes. Neither of us had diabetes in our families.
Now I'm suffering some of what she dealt with. I have decided, like Roger, that I will take my own life when the suffering becomes more than the pleasure of living--when I have to stop driving--when I spend the bulk of my day in efforts and treatments just to stay alive. Maintaining life and truly living are two very different things.

I didn't have the chance to know Rodger personally. I regret that deeply and wish him well on his journey.

A few years ago, I called into an LGBT radio show when Rodger McFarlane was the guest and brought up the issue of the lack of community philanthropic support for transgender causes (he was with the Gill Foundation then). The on-air conversation spurred an email exchange and later I noted the Gill Foundation taking a more active role on trans issues and causes.

A small interaction to be sure (I never actually met him), but one that taught me about the kind of person he was and the kind of positive role model he blessed our while community with.

RIP Rodger McFarlane. I hope we see more honoring his life by emulating his broad and inclusive vision and activism.

I also didn't know Roger. But it was not pain or disabllity that took his life but depression. It is sad that it was not treated successfully.